The Canadian Cerebral Palsy Registry

The CP Demonstration Project brings together an inter-disciplinary team with complementary levels of expertise (clinical research, epidemiology, molecular genetics, advanced imaging techniques, animal models, regenerative medicine, outcomes and health services research) to form a new collaborative network that will work synergistically to increase our understanding of the causes of CP and explore potential avenues for both prevention and treatment.


  • Michael Shevell, M.D. CM, FRCPC, FAAN, Departments of Neurology/Neurosurgery & Paediatrics, Montreal Children’s Hospital , McGill University
  • Darcy Fehlings, M.D., Bloorview Kids Rehab, Toronto, ON
  • John Andersen, M.D., Glenrose Rehabilitation Hospital, Edmonton, AB


Shevell, MI., Dagenais L, Oskoui M. The epidemiology of cerebral palsy: New Perspectives from a Canadian Registry. Sem Pediatr Neurol. (In Press)

Oskoui M, Joseph L, Dagenais L, Shevell M. The prevalence of cerebral palsy in Quebec : alternative approaches. Neuroepidemiology. 2013 Jan 24;40(4):264-268.

Kyriakopoulos P, Oskoui M, Shevell M. Term Neonatal Encephalopathy Antecedent Cerebral Palsy: A Population-Based Study. Eur J Paediatr Neurol. 2013 May;17(3):269-73

Benini R, Lynn Dagenais, and Michael I. Shevell. "Normal imaging in patients with cerebral palsy: What does it tell us?" The Journal of Pediatrics, 2013 Feb;162(2):369-74.e1.

Self L, Lynn Dagenais, and Michael Shevell. " Congenital non-central nervous system malformations in cerebral palsy: a distinct subset?" Developmental Medicine & Child Neurology. 54. (2012): 748-52.

Kyriakopoulos P, Oskoui M, Shevell M. Does antenatal tobacco or alcohol exposure influence a child’s cerebral palsy? A population-based study. Pediatr Neurol. 2012 Nov;47(5):349-354.

Kryiakopoulos P, Oskoui M, Dagenais L, Shevell MI. Term neonatal encephalopathy antecedent cerebral palsy: A population-based analysis. Dev Med Child Neurol 54 (Suppl 4): 153-154, 2012.

Oskoui M, Majnemer A, Dagenais L, Shevell M. The relationship between gross motor function and manual ability in cerebral palsy. J Child Neurol. 2012 Oct 30.

Benini R, Dagenais L, REPACQ Consortium, Shevell MI. Does the absence of an abnormal imaging study define a specific cerebral palsy subtype? Dev Med Child Neurol 54 (Suppl 4): 52, 2012.

Towsley K, Shevell MI, Dagenais L & REPACQ. A population based study of neuroimaging findings in children with cerebral palsy. Eur J Pediatr Neurol 15:29-35,2011.

Self L, Shevell MI, REPACQ. A Registry Based Assessment of Cerebral Palsy and Cerebral Malformations. J Child Neurol 25:1313-1318, 2010.

Lasry O, Shevell MI, Dagenais L & REPACQ. A Cross-Sectional Comparison of Periventricular Leukomalacia in Preterm and Term Children. Neurology 74;1386-1391, 2010.

Simard-Tremblay, E., Shevell, M. et Dagenais, L. (2010). Determinants of ambulation in children with spastic quadriplegic cerebral palsy: a population-based study. J Child Neurol, 25(6), 669-673.

Shevell, M. I., Dagenais, L. et Hall, N. (2009). Comorbidities in cerebral palsy and their relationship to neurologic subtype and GMFCS level. Neurology, 72(24), 2090-2096.

Shevell, M. I., Dagenais, L. et Hall, N. (2009). The relationship of cerebral palsy subtype and functional motor impairment: a population-based study. Dev Med Child Neurol, 51(11), 872-877.

Dagenais L, Hall N, Majnemer A, Birnbaum R, Dumas F, Gosselin J, Koclas L, Shevell MI. Communicating a diagnosis of cerebral palsy: An analysis of caregiver satisfaction & stress. Pediatric Neurology 35:408-414,2006.
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